It's not easy to raise a child with a craniofacial syndrome but having a strong support system can change everything... Here's a video created by Cranio Mom, Mel to tell you what it's all about.
Saturday, August 6, 2011
Friday, July 8, 2011
Hoping
Hubs and I were waiting this afternoon at the clinic of Dr. Padilla and Dr. Tansipek for Janina's checkup with the former. We were leafing through the Mommy Pages directory and when we got to the page where there were support groups for Autism, hubs said that next time we should already be listed on that directory as a support group for Craniofacial families.
I sure hope that will become a reality soon!
I sure hope that will become a reality soon!
Wednesday, June 15, 2011
Videos from the UK on Craniosynostosis
While I have not been able to create any posts as of the moment, here are a couple of videos from the UK featuring various Craniosynostosis.
Craniosynostosis is a congenital defect (present at birth) that causes one or more sutures on a baby's head to close earlier than normal. Sutures are connections that separate each individual skull bones. The early closing of a suture leads to an abnormally shaped head.
I hope these videos are as informative to you as it has been for us.
Children's Craniofacial Surgery EP1 - A Fighting Chance
Children's Craniofacial Surgery - Rogue Gene
Children's Craniofacial Surgery - Smile
Thank you to Melanie Roder for sharing these links on her FB page :)
Craniosynostosis is a congenital defect (present at birth) that causes one or more sutures on a baby's head to close earlier than normal. Sutures are connections that separate each individual skull bones. The early closing of a suture leads to an abnormally shaped head.
I hope these videos are as informative to you as it has been for us.
Children's Craniofacial Surgery EP1 - A Fighting Chance
Children's Craniofacial Surgery - Rogue Gene
Children's Craniofacial Surgery - Smile
Thank you to Melanie Roder for sharing these links on her FB page :)
Subscribe to:
Posts (Atom)