Welcome!

Thank you for visiting out our site!

It is without a doubt that appearance makes a significant impact on a person's life. This is the challenge that many patients with Craniofacial Disorders such as Apert Syndrome, would have to face.

But as they say, Beauty is in the eye of the beholder. What may be pleasing to one person could be an eyesore for the other. We believe that if people are made aware of these disorders, they would be treated with more acceptance and understanding by society.

Our dream is to create a support group for Filipino families dealing with Apert Syndrome or other Craniofacial Syndromes as well as to eventually create awareness and acceptance for our children. If you know of anyone with Apert Syndrome, please leave me a message so that we would eventually be able to form our own network. Thank you and God bless!

Wednesday, June 15, 2011

Videos from the UK on Craniosynostosis

While I have not been able to create any posts as of the moment, here are a couple of videos from the UK featuring various Craniosynostosis.

Craniosynostosis is a congenital defect (present at birth) that causes one or more sutures on a baby's head to close earlier than normal.  Sutures are connections that separate each individual skull bones.  The early closing of a suture leads to an abnormally shaped head.

I hope these videos are as informative to you as it has been for us.

Children's Craniofacial Surgery EP1 - A Fighting Chance
Children's Craniofacial Surgery - Rogue Gene
Children's Craniofacial Surgery - Smile

Thank you to Melanie Roder for sharing these links on her FB page :)
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