A touchbase for Filipinos with Apert Syndrome or any Craniofacial Syndrome or for their family members/friends who would like to know more about Craniofacial Syndromes.
Welcome!
Thank you for visiting out our site!
It is without a doubt that appearance makes a significant impact on a person's life. This is the challenge that many patients with Craniofacial Disorders such as Apert Syndrome, would have to face.
But as they say, Beauty is in the eye of the beholder. What may be pleasing to one person could be an eyesore for the other. We believe that if people are made aware of these disorders, they would be treated with more acceptance and understanding by society.
Our dream is to create a support group for Filipino families dealing with Apert Syndrome or other Craniofacial Syndromes as well as to eventually create awareness and acceptance for our children.If you know of anyone with Apert Syndrome, please leave me a message so that we would eventually be able to form our own network.Thank you and God bless!
It's not easy to raise a child with a craniofacial syndrome but having a strong support system can change everything... Here's a video created by Cranio Mom, Mel to tell you what it's all about.
